Wednesday, July 29, 2009

Earlier return to TCH than expected!

So I haven't updated in a while, sorry!
We have had a great summer so far and have enjoyed the warm sun on our faces and cooling off in the pool or beach. Dylon has been doing really good considering he had open heart surgery 7 weeks ago. I had the mind set that we would have our big follow up 6 months post surgery but Dylon has started to gag randomly and burping too. I know it sounds so weird, but he's not trying to vomite, he's just gagging. I have been noticing it for the past 2 weeks and so he had another gagging episode at my Aunts house when he had spent the night with her and I decided we needed to get some further evaluation. We saw Dr.K (family doc) yesterday and he talked to Dr.S who decided that Dylon may have Tracheomalacia. Tracheomalacia is where there is softening of your esophagus, Dylon's softening comes from the vascular ring which has put pressure on his esophagus and this was caused by his circumflex aorta. The vascular ring was released during surgery, and he is just now beginning to show the effects of tracheomalacia. Why is he showing effects now, 7 weeks after surgery, we don't know.
I just got off the phone with Dr.S (Dylons cardiologist) and he wants us to come up in two weeks to have an echo to rule out the possibility of a coarcted aorta, which Sacred heart thought they saw at our last appointment. So we have to rule that out. please pray they rule that out;)We will then see Dr.S and also an ENT that will give us an approximation on how long Dylon will have tracheomalacia.
I was really hopeing that Dylon's heart journey was kind of over, but I am realizing that it will Never be over. I'm a little discouraged this morning but i'll get over it! *S*
If MckMama can be so strong during Stellans heart journey, so can I! Please pray for Stellan and the whole Mck clan!
God Bless!
Shelli

1 comment:

Tiffany Lockette said...

I love following your blog and getting updates about your boys. One thing, it is very hard to read your post with the green background and blue print. Just thought I would let you know. Praying for Dylon.